Life is not about the steps you’ve taken, or the places you’ve been, it’s about the footprints you leave behind. My name is Cindy AKA @Cindy Chmielewski and I hope the digital footprints I leave behind help a future generation of myeloma warriors become empowered patients. July 14, 2014 was my 6 year Cancerversary.
I have grown tremendously as a person over these six years. Six years ago I was an uneducated/uninvolved patient who blindly followed doctor’s orders. I didn’t ask questions, research my conditions or seek second opinions. Today I am an empowered patient and an active participant in my healthcare. I attribute social media as being a major impetus for my metamorphosis. I learned through listservs, blogs, Facebook, forums, teleconferences and Twitter.
In case you missed it - Twitter just announced a tool for organic tweet analytics. Just thought I'd share. Happy Friday!
Hi. I'm looking for feedback on how other large organizations handle individual physician or researcher websites. I work at an academic health sciences center that includes several health science colleges (medicine, nursing, etc.) as well as two hospitals and a group of community-based physicians. In addition to the individual profiles and departmental/service line pages that faculty and clinicians have on our official institutional websites, many create individual sites for their practices or labs. Does anyone have policies (or even unwritten rules of thumb) about such sites. Do you encourage them? Discourage them? Put parameters on them (such as rules about using the institution's logo)? Offer support to develop them? Any input is appreciated, but especially from others in an academic health center context. Thanks!
My name is Sarah Bramblette, I am 36-years-old and have primary Lipedema and secondary bilateral lower extremity Lymphedema. I was diagnosed with Lymphedema in 2001, and Lipedema in 2004. Lipedema was first recognized by doctors at the Mayo Clinic in 1940 and is a medical condition that causes the abnormal accumulation of adipose tissue in my hips, legs, and arms. I have an advanced stage of Lipedema which includes the onset of secondary Lymphedema.
My initial diagnosis was delayed by two years because doctors blamed my weight for the size of my legs. Often patients with my conditions go undiagnosed due to lack of awareness among medical professionals who mistake Lipedema for obesity. Many times patients self-diagnose themselves from information they find on the [...]