Patient Involvement Archive
Health Care Social Media Summit – Melissa Hogan Story
Posted on October 26th, 2012 by Admin
Melissa Hogan is a lawyer, author, speaker and as she would tell you, most importantly an advocate for rare disease families. Her efforts in the areas of advocacy, medical research, fundraising, and pharmaceutical and clinical trials made her a scholarship attendee at this year’s Health Care Social Media Summit at the Mayo Clinic. Her speech during the panel [...]
Health Care Social Media Summit – Patti Koblewski
Posted on October 26th, 2012 by Admin
Patti Koblewski is Pain Ambassador for Arizona Pain Specialists and Patient Advocate/Educator for Boost Medical. Her focus of teaching others how to successfully manage their pain and live their lives led to her being a scholarship attendee at this year’s Health Care Social Media Summit held at Mayo Clinic. During the panel “Social Media Gives Patients a [...]
Twitter #HeartChat this Friday on Wear Red Day
Posted on February 1st, 2012 by Admin
How has heart disease affected your life? Do you know whether you’re at risk? How can you take steps to protect your heart? As our previous post announced, February is Heart Month, and Friday, February 3 is National Wear Red Day®, which calls attention to heart disease as the number one killer of women. To [...]
SCAD Story Featured in Minnesota Medicine
Posted on December 21st, 2011 by Admin
The story of how Katherine Leon and Laura Haywood-Cory used social media to upend the traditional approach to research in rare diseases with their interest in Spontaneous Coronary Artery Dissection (see background here) is featured in the front section of the current issue of Minnesota Medicine. Here’s an excerpt: In 2003, just two months after [...]
The Transformational Power – and Promise – of Social Media
Posted on September 13th, 2011 by Admin
At Transform 2011 (#txfm11), a conference sponsored by the Mayo Clinic Center for Innovation, we have a breakout session with the title of this post. I’m presenting along with “e-PatientDave” deBronkart and Dr. Bryan Vartabedian, who are offering patient and physician perspectives. Here are our slides: The Transformational Power – and Promise – of Social [...]
PatientsLikeMe: Connecting People, Conducting Human Subjects Research
Posted on September 12th, 2011 by Admin
PatientsLikeMe allows paying customers to learn from members’ online interactions. But it goes a step further by conducting its own human subjects research using the health information its members share.
Patient, Caregiver Scholarship Recipients for Social Media Summit
Posted on August 26th, 2011 by Admin
As I wrote late Wednesday, we were amazed and gratified at the response to our scholarship contest to choose five patient/caregiver representatives to participate in Social Media Week at Mayo Clinic in October. With 35 strong applicants, choosing the five recipients was a difficult job. These five individuals will have travel and lodging expenses, along [...]
Tremendous Patient/Caregiver Scholarship Contest Response
Posted on August 24th, 2011 by Admin
Tomorrow we will be announcing the five recipients of patient/caregiver scholarships to attend the social media events we’re hosting in October, including the Social Media Summit (in conjunction with Ragan Communications), our Social Media Health Network member meeting and our first Social Media Residency. The recipients of the scholarships have been chosen through a process [...]
Mayo Clinic launches social network to connect global Mayo Clinic community
Posted on July 5th, 2011 by Admin
Mayo Clinic has been a leader among health care providers in using social media tools, with the most popular medical provider channel on YouTube, nearly 200,000 followers on Twitter and more than 53,000 connections on Facebook. We’ve also been blogging for more than three years, starting with our Podcast Blog and News Blog. Two years [...]
Lessons from Gulf Oil Spill and Public Involvement
Posted on September 9th, 2010 by Admin
One of my Mayo Clinic colleagues had a great observation this morning about the oil spill in the Gulf of Mexico and how it relates to patient involvement in health care and our work with the Mayo Clinic Center for Social Media: While I was running this morning and listening to NPR on my iPod, [...]