Posted by Alanna Wong (@alannawonglife) · Aug 11, 2014
Alanna Wong - Patient/Caregiver Scholarship 2014
Imagine falling asleep on June 29th, 2009 and not waking up until February 11th, 2010.
This is one of the many sleep spells I've had during the past 15 years due to a rare neurological condition called Kleine-Levin Syndrome (KLS). I've always told myself it's not what you go through that makes you the person you are, it's how you react to the situation that you were dealt with that makes you the person you are.
I have looked beyond my struggle and have found meaning in my life by helping others. I have spent the past seven years dedicating my life to raising awareness for KLS. In an effort to help other sufferers, I have raised funds for research, created a community where others can engage and connect, and I have facilitated the KLS Foundation Nonprofit website. My mission is to improve the quality of life for those struggling and for anyone experiencing chronic illness by providing an online community to connect and engage and to offer a heart full of compassion to let others know they are important and cared for.
I am the Social Media Manager for the KLS Foundation Non-profit. I have grown their page by leaps and bounds and have raised awareness through social media sites about KLS. The following are some of me recent social media work for invisible illness and KLS: http://invisibledisabilities.org/invisible-no-more/sharing-illness-others-alanna-wong/ https://www.facebook.com/KLSFoundation https://twitter.com/KLS_Foundation http://alannawonglife.com/ http://www.klsfoundation.org https://www.youtube.com/user/klspatient411 https://www.facebook.com/alannawonglife https://twitter.com/Alanna_Wong
I would love this opportunity to learn and offer my social media help in any way I can! Social media has helped me during my most difficult years of KLS. I was able to connect with people going through the same, similar ailments, I was able to create a community of people that understood me completely. Social media is vital for patients, doctors, and caregivers so that they can connect, engage, build relationships, and learn from each other! Thank you for this opportunity!
Alanna Wong, Social Media Manager for KLS Foundation
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