Marie Kenerson (@mariekenerson)
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Marie Kenerson (@mariekenerson) replied to Mark Hathaway - Patient/Caregiver Scholarship 2014 · Fri, Jul 25 11:11pm · View
I hope you can connect the people who have suffered from encephalitis, coma, brain trauma, LockedIn syndrome, even stroke or ALS, their family members and care givers. To connect with one another using accessibility of social media to share information, experience, resources, conversations, virtually any kind of mean-making needed by people to navigate such trauma. The medical information as well as the psychological and emotional support can help bring understanding and practical advice to others. And you spiritual perspective is something to behold. In these days if HC striving to engage patients, you are great insights about the kind of care that does engage and heal. Good luck getting the word out. I wish it was easier to count those you have touched with you [...]
Marie Kenerson (@mariekenerson) replied to Mark Hathaway - Patient/Caregiver Scholarship 2014 · Tue, Jul 15 12:05am · View
Mark, your book describes a spiritual journey through what to many would seem a horrifying experience. You have overcome so many challenges and have so much to share with medical practitioners, patients and families. It is through social media that you can finally realize the dream of connecting people, sharing, learning and comforting others. Good Luck.
Marie Kenerson (@mariekenerson) replied to My friend, Mark Hathaway, recently published a book and website about his [...] · Sun, Sep 29 2013 · View
Thank you Lee and Stacy. I would be so appreciative. I will also try to Schedule Mark Hathaway to participate as it is really his Dream.
From Marie's iPhone
My friend, Mark Hathaway, recently published a book and website about his experience with LockedIn Syndrome. His story is an amazing courageous spiritual adventure. He would like to create a forum community to support others with LIS and family members. Does anyone know of existing resources or have advice on easiest way to get started?