Social Media Health Network

Bringing the Social Media Revolution to Health Care

Kari Ulrich (@mwva)

Kari Ulrich's Interests

None currently

Areas Of Expertise

None currently

Groups I Follow

SMHN Community

Activity by Kari Ulrich

Kari Ulrich (@mwva) posted · Wed, Nov 9 2011 · View  

The is discussion about the November 2011 Article "50 Secrets Nurses Won't Tell You". Here is my response:

Experienced from both sides of the bed
The November 2011 Issue of Readers Digest reads in big, bold print “50 Secrets Nurses Won’t Tell You”

Articles like this create fear and mistrust in the patient community.

The front of the article states “Doctors are clueless about what really happens in the beds, rooms and halls of our hospital” Really? In my experience physicians are very well aware of what is happening in the bed. I had just had a major vascular surgery in 2009, when I developed chest pain in the ICU. Who was there at the side of my bed reading my EKG and ordering the Nitro Drip? The ICU [...]

Click here to view the rest of the post

Login here to comment.

Kari Ulrich (@mwva) replied to We are doing something a little different in our patient · Thu, Nov 3 2011 · View  

OK- we have one problem- if anyone has any suggestions for the future it would be much appreciated. FMDChat is a global support group, we have patients from all over the world. The Chat we are doing is great for those of us in the US- but for those patients in Scotland and Sweden, UK it is scheduled in the middle of the night! The United States is leading in patient support for this vascular disease, it is sad that the patients who need the most support have to find it in the middle of the night.

Login here to comment.

Kari Ulrich (@mwva) posted · Wed, Nov 2 2011 · View  

We are doing something a little different in our patient community, and I wanted to share it with all of you.
FMDChat is holding a facebook chat, but instead of doctors telling patients about Fibromuscular Dysplasia (FMD), we are giving patients the opportunity to educate physicians what it is like living with FMD, what our challenges are in health care. Please join us in our conversation, I hope this is the first of many more to come. I am grateful to the Dr. Sevilla and my husband, Dr. Ulrich for taking this leap of faith and making a difference in our patient community.

https://www.facebook.com/note.php?note_id=231374106925293#!/notes/fmd-chat/join-fmdchat-and-our-special-family-medicine-guests-mike-sevilla-md-mike-ulrich-/231374106925293

Kari Ulrich (@mwva) responded:

OK- we have one problem- if anyone has any suggestions for the future it would be much appreciated. FMDChat is a global support group, we have patients from all over the world. The Chat we are doing is great for those of us in the US- but for those patients in Scotland and Sweden, UK it is scheduled in the middle of the night! The United States is leading in patient support for this vascular [...]

Posted Nov 3, 2011 · View

Christopher Burgess (@burgessct) responded:

Timezone logistics: My experience has been to run the online event in two/three segments thus following the sun if you will. It may require local gymnastics such as using "captured content" for some presenters or stretching across a few days to coordinate with your guest commentator or discussions can be captured and shared in forum for review at leisure by both the participants or the doctors. A cadence such as this will hit everywhere in [...]

Posted Nov 4, 2011 · View
Login here to comment.

Kari Ulrich (@mwva) posted · Mon, Oct 24 2011 · View  

During the Mayo Clinic Social Media Residency I had the opportunity to ask Mike Sevilla, MD what he thinks about Participatory Medicine. Here is what he had to say:

http://fibromusculardysplasia.blogspot.com/2011/10/participatory-medicine.html

Thank you Dr. Sevilla!

I highly recommend every health care provider read:
Participatory Health Care: White Pages by Tom Ferguson, MD and the e-Patient Scholars

Login here to comment.

Kari Ulrich (@mwva) replied to Liking how we're brainstorming on how to improve the site. · Thu, Oct 20 2011 · View  

Agree! Great idea Chris.

Login here to comment.

Kari Ulrich (@mwva) posted · Thu, Oct 20 2011 · View  

I am at the conference :) I would like to see a section for patient advocacy groups to connect. Thanks!

Login here to comment.
Loading information...