Social Media Week at Mayo Clinic Patient/Caregiver Scholarship 2013

See this post for contest details, including how to enter.

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Katy Hanlon - Patient/Caregiver Scholarship 2013

Published on Thu Aug 8th 9:54pm

I am a person in recovery from serious mental illness. A peer. Over the years, I have needed the support of hospitalizations, partial hospitalizations, intensive outpatient programs, and outpatient clubhouses. I then found and graduated from Boston University Center for Psychiatric Rehabilitation’s Training for the Future program. It is where I first learned that recovery is possible. However, it is within the realm of social media that I have found my recovery voice. Twitter most especially.

I first joined twitter in order to explore homelessness issues and viewpoints. I wanted to get my organization’s targeted trainings out into the

Annie Mitchell - Patient/Caregiver Scholarship 2013

Published on Wed Aug 7th 9:34am

“I don’t blog.” It sounds eerily like a confession. In the intense 6-1/2 years since our daughter’s diagnosis with a rare autoimmune disease, juvenile dermatomyositis, Facebook is a verb in my daily language. I tweet; I instagram that photo; I pin. I connect on LinkedIn. I do all with a three-fold purpose – to help educate others about juvenile myositis (JM), to raise JM research funds, and to empower JM patients/caregivers through community connections & helpful resources.

SOCIAL MEDIA SHARES “STORY” & EMPOWERS PATIENT “VOICE” – Statuses, photos & links on Facebook explained my daughter’s health challenges with friends

Linda Hageman, RN - Patient/Caregiver Scholarship 2013

Published on Mon Aug 5th 12:49pm


Which comes first – the chicken or the egg? While Mayo Clinic is known worldwide for its excellent care and world class physicians, it is the clinic’s diagnostic expertise that has proven life-saving and life-changing for me.

My Mayo Clinic journey started after I had undergone open heart surgery, which I thought was going to be surgery to remove a parathyroid chest tumor. An endocrinologist and a thoracic surgeon had made the diagnosis in my hometown and set out to remove the tumor through a laparoscopic procedure.

I awoke to find the physicians were

Rita Christensen - Patient/Caregiver Scholarship 2013

Published on Fri Aug 2nd 2:50pm


Today, these symbols are the language of social community, conversation and connection!

The African proverb asserts: "It takes a village to raise a child." But who is taking care of the village? Extraordinarily, the social community today can transmit information faster and to millions more people than Alexander Graham Bell’s vision. Exploiting that factorial kind of power can transform the lives of caregivers and patient advocates.

Having been a caregiver to a 91 year old indigent woman without family and for my father, I fully understand what caretaker stress is. I wish I had the resources,

Melissa Lorello - Patient/Caregiver Scholarship 2013

Published on Fri Aug 2nd 11:24am

I began having migraines as a child; they became more frequent and severe. In my twenties, I experienced approximately fifteen per month. In my thirties, I suffered every day. I was miserable but I worked full time, was married and had children that needed their mom. On September 16, 2010, I collapsed and my nine year old found me. I was unresponsive.

Everyone thought I had a stroke due to my symptoms. After tests, appointments and therapies, it was not a stroke, but an attack caused by migraine. My diagnosis was M.U.M.S (Migraine with Unilateral Motor Symptoms). Every time

DebK - Patient/Caregiver Scholarship 2013

Published on Mon Jul 29th 12:31pm

“It’s Mom. Can we stay with you for a few months while Dad recovers from cancer surgery?” Little did I know six months would turn into two years, during which time my dad contracted pneumonia and MRSA and my mom required open heart surgery to remove a tumor. This was before social media was prevalent, and I became worn out caring for my parents and my own family. My family helped when they could, but I felt all alone—it seemed I was on autopilot; working during the day, visiting two different hospitals at night, and then returning to care for

Rachel Tanner - Patient/Caregiver Scholarship 2013

Published on Mon Jul 29th 9:13am

I intend to follow in the footsteps of e-patients who have made impacts in the medical community using the amazing social media tools that have been handed to us. I have several disorders, most of which fall under the umbrella term “Dysautonomia.” I became sick in 2008, which was 2 months before I graduated high school.

Now I’m a 23-year-old senior in college, double majoring in English and Communication Arts. The fields of mass communications and social media are my passions, and they’ve always fascinated me. From away messages full of angst-ridden lyrics on AOL Instant Messenger to “liking”

Suzanne Vela - Patient/Caregiver Scholarship 2013

Published on Fri Jul 26th 11:48am

Valentine’s Day has never been a significant event for my husband and me. In 2011, however, it took on a whole new meaning to my family, and has since become a hallowed day of reverence.

On February 14th, after fighting a chronic cough for several days and realizing I was having major breathing difficulties, I asked my husband to take me to the nearest ER. That evening, we pulled up to the Phoenix Mayo Clinic and I was immediately hooked up to a respirator while the ER Team conducted a battery of tests, X-rays, etc., to determine a diagnosis

Amy Donohue - Patient/Caregiver Scholarship 2013

Published on Fri Jul 26th 9:39am

I never thought that kidneys would become my life, until Social Media stole my kidney a little over two years ago. I responded to a tweet (I had already liked their Facebook page) from a woman whose mother was put on the donation list, after suffering from kidney disease for ten years. I responded and donated my right kidney on April 19th, 2011. My testing and surgery were at the Mayo Clinic in Phoenix.

One of the reasons I kept talking about it, during the testing at Mayo Clinic, was to get support. I needed to know it was

charleneneu - Patient/Caregiver Scholarship 2013

Published on Thu Jul 25th 8:00pm

In 2005, our amazing Mom, was told she had Alzheimer’s. Our family had no clue how this devastating news would change all of our lives. As caregivers, we needed to be able to figure out resources that were available to help maintain her quality of life and her health. Our Mom’s ability to talk with her medical care staff about pain issues receded as her dementia advanced. A cancer survivor, with a history of gastrointestinal issues, high blood pressure, arthritis and chronic pain, my Mom, had long been treated for pain issues.

As a gerontologist, a communicator and a

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